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What the early symptoms of IgG4-RD can feel like

More videos

Steroid side effects

Needing doctors to understand the IgG4-RD experience

Understanding the patient experience

Hunting IgG4-RD knowledge through all sources

Hunting knowledge

Identifying IgG4-RD through condition-specific strategies

Effective testing

Cory Perugino

Exploring diagnostic challenges

Diagnostic barriers

Curiosity and clarity

Pushing at setbacks

Pursuing answers

Informed teams

Confronting disbelief

IgG4 teamwork

Delayed diagnosis

IgG4 uncertainty

Trust instincts

Nonprofit resources

See more videos

Carsten Sørensen, who lives in Denmark, Europe, was diagnosed with IgG4-related disease in 2021 at age 47, shares how persistent abdominal pain, recurrent infections, and a delayed diagnosis eventually led to the discovery of IgG4-related disease.

Transcript

I had some dull pain in what I call the solar plexus, the central upper part of my body, but having problems with the acid reflux, I thought that that might be the cause of it.

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But otherwise I went to the doctor. I called the general practitioner, I think it’s called. He agreed and upped my doses of this acid prohibitor.

But I also had some pain in, should we call it my manly parts, in the right side. He examined this also and said it was quite common for men to have what’s called the varicocele. Many men have this, and it was nothing to worry about.

But then we go to early summer 2020 and I have several infections in my testicles and this pain in my abdomen, and it just got very intolerable.

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More videos

Tapping into IgG4-RD nonprofit resources
Trusting your instincts when unheard by IgG4-RD doctors
Living through the uncertainty of IgG4-related disease
The frustration of delayed IgG4-related disease diagnosis
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