Carsten Sørensen, who lives in Denmark, was diagnosed with IgG4-related disease in 2021 at age 47. He pushes back on common advice regarding how to find information about the condition.
Transcript
I know that some say, “Don’t do Doctor Google, don’t Google anything.” But my experience is that Google can both be an enemy and also a friend.
So ask questions, and some of them may be hopeless or not relevant. But if you’re able to do some research yourself, that’s maybe part of the process. It was for me.
And then, have good support from friends and a wife or girlfriend. Or, if you have a network with knowledge — even if you have doctors or intellectual people in your network — don’t be afraid to ask them for help.
