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Featured Articles
Columns

The invisible math that goes into scheduling with a rare disease

As I plan upcoming work trips, I’m reminded how complex my scheduling is. For many, planning just means booking and showing up. But because I live with a rare chronic illness and juggle multiple roles, my plans constantly shift with medical and work demands. My calendar isn’t just filled with…

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News

US study highlights high cost burden of IgG4-RD

People with immunoglobulin-G4-related disease (IgG4-RD) often attend dozens of outpatient doctors’ visits in the months immediately before and after diagnosis, and many are hospitalized for more than a week at a time. That’s according to a study based on U.S. commercial insurance records that also showed healthcare-related costs increase…

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Columns

Turning to kintsugi to help me process living alone with chronic illness

There’s an art form in Japan called kintsugi, which entails repairing broken pottery with lacquer mixed with gold or silver so that the cracks don’t disappear. Instead, they become part of the design. I think about kintsugi a lot, because chronic illness doesn’t just break you once. It…

Featured Topics

  1. After an IgG4-related disease diagnosis: What to expect

  2. Building your IgG4-related disease care team

  3. Condition confusion: Why IgG4-RD is often misdiagnosed

  4. IgG4-related disease steroid side effects: How to cope

  5. Living with IgG4-RD: How to handle symptoms and flares

  6. Managing mental health with IgG4-related disease

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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