We often talk about the relief and hope we feel once we finally have a proper IgG4-RD diagnosis, and thus a name for our collection of symptoms. But we rarely talk about the battle that’s yet to come. When we learn we have IgG4-RD, we also learn that…
IgG4-RD Life - a Column by Mahsa Pazokifard
Living with IgG4-related disease can be overwhelming at times because of its unpredictable nature. Some fellow patients and I often joke about having to spin the wheel of IgG4-RD symptoms when we wake up in the morning, to see what we’ll have to face that day. Jokes aside, the…
After countless appointments, I still clung to a sliver of hope that my new doctors would be able to put a name to the various symptoms I was experiencing. But despite being riddled with pain, I was told that all of my scans and blood work looked normal. “There’s nothing…
For decades, my body was a puzzle that baffled even the most experienced doctors. A symphony of pain, fatigue, and other strange symptoms left specialists stumped. It took relentless self-advocacy, unwavering resilience, persistent determination, and countless hours of research to finally be diagnosed with Sjögren’s disease and Mikulicz’s disease (an…
